My wife and I took our daughter (who just turned ten months old last week) to the pediatrician about a month ago, and he noticed something odd about her 'soft spot'. So he recommended we go to the Childrens Hospital in Chapel Hill (NC). The doctors there this past week infomed us that she has Craniosynostotis. Basically two of the bones in her skull are prematurely fused together, and if left untreated they will cause pressure on the brain and possible brain damage.
My wife and I were horrified. Surgery, for our little angel. We had never even heard of this condition, and now, she has to have major surgery.
The craniofacial doctor spoke to us, and explained to us that they will remove the bone from her skull, separate the two bones,(one on the right side and the other at the right front) and place them back in. He answered a few questions we had, and told us to meet back with them after labor day.
The ride home was a somber one. I know the doctors and medical staff are skilled at their work and the surgery will go fine but still, in the back of my mind is that little voice ...
"My god, she's only ten months old!!"
"My little girl, they are going to cut on my little girl!"
So, we have been researching the disorder, and learning more about it. In some odd twist of fate, the Discovery Health channel had two shows back to back covering craniosyostotis. That answered some of our questions, and brought up even more.
So now we wait, for our next appointment after labor day, when we meet with the surgical team. This time I feel we will be better prepared, having tossed and turned, argued and debated, and cried over the situation. This time we come with a list of questions .
Why have I written all of this? For my own sanity of course. I know, years from now, my daughter will never remember any of this, but for my own peace of mind.